Anyone with Chronic Pain Syndrome should be able to understand here. Sleeping patterns, they are awful and just when you think you have found a routine to sleep, like a normal person, along comes the pain and leaves you in agony and unable to sleep
I go through this every week, for months, for years now, I am past making it annoy me I guess I have accepted it, but it still depresses me. I have not been told I am clinically depressed, some people just get depressed once in a while, happens to the best of us yeah?
I personally seem to go through a pattern of 4 days. An example of this week below
Sunday – Good sign, I was asleep just before midnight and up before 09:00 am!
Monday – Sleeping for 23:00 and awake at 07:30 with the kids = Superb
Tuesday – Fell asleep at 22:00 and was up and showered for 07:30 am all told
Wednesday – Fell asleep at 22:00 again, and was up with my Daughters at 08:00 am
Thursday – Tonight…………NOTHING
Friday – As I type it is 04:05 and I am in agony, tonight it is my left hip, it feels locked, it feels like I have a fracture or a break, I just can’t move it. So 1 Diazepam, 1 Dihydrocodeine and 1 Tramadol later and lashings of Voltaren Gel and the pain has reduced a whopping 10% or so
See this is just one of 100 things about Chronic Pain. The pain is the main show in town, but all these small side effects, issues due to pain and medication, or lack of medication, or too much medication, having to take more medication because of the medication you are on, sleep, making plans, going out for a meal for example is near on impossible for me, visiting family and friends, going to the shops, going to the bathroom, showering or bathing to getting dressed and all in-between are a REAL issue
So not only are you in pain, you are miserable due to all the things that come with this invisible disability people discriminate against every day, WHY? You ask. Well if you are not in a wheelchair coming out of your car in a disabled parking bay you are a cheat and lair to people watching on, yeah these sad people who are perfect and have a perfect life. I am joking of course, these people are so sad and miserable they go about pointing others issues out to distract from their own problems. Why is this relevant you ask, well it is because it is all part of the issue. Pain is the tip of a very big iceberg afloat at Sea for people with Chronic Pain, and tiny problems become monster problems
I would not wish this crap on my worst enemy, if I had an enemy. I don’t keep enemies, they can keep me, you are on your own, so I would not wish this on a Dog or a Cat or any other Animal. It is truly the most difficult way to live, especially when 99% of us had a pain free childhood, and knew a life where there was no pain, we could do anything, like anybody, but the pain comes and it is like all over body toothache. This is the best way I can describe this pain, all over body toothache feeling
It could be worse, and I know it could be, but right this second, I am done, I had a slight argument with an Admin on a cracking Social Media site tonight, and I think perhaps this played a part. As many with Chronic Pain will testify, a STUPID debate or one wrong word can set you off into the land of stress, sadly for us, Stress = more pain, then worrying about the pain leads to more pain, this in-turn leads to a depression type feeling, yeah, you got it, leading to more pain and due to one medication I have the memory of the stupidest goldfish in the class 🙂
I am on the path looking for God at the moment, and sadly times like this I ask “Why God” and I hear people say “God works in mysterious ways” or “It is Gods way of helping you become a better person” And if the truth be told, living like this gives you a sense of caring. But God, if you are listening. I care, I have learnt my lesson, I am done, can you please stop? Can you realise that I am not happy to learn this? I am not happy with this Mystery God. I respect your ways God, I do, but not this way I don’t! 14 years of pain getting worse as I approach age 40. I have had enough God. No saying or religious meaning at this second will help me understand why you put me in all this pain. I am not a Buddhist that I know off. So please God, whatever your plan is for me, can I ask you re-think the plan? Because this is HELL to me. I talk to you, reach to you, I have done for many years, but the pain still comes. If you are trying to build my character, God I have character. Please, enough! I beg. Let me live with less pain so I can be a regular Husband and Father and go back to having some sort of life.
I don’t ask for much. In-fact I don’t pray for much, this is a sick joke now, but that is the pain talking. I just want to be regular and normal and sleep like the rest of the inhabitants in the GMT -/+0 Time Zone. As things stand I am Australian one week, and from the West Coast of the USA the next with a hint of GMT time thrown in for good measure 😦
I am deeply sorry for anyone who suffer as I do, it blows